<?xml version="1.0" encoding="UTF-8"?><rss xmlns:dc="http://purl.org/dc/elements/1.1/" xmlns:content="http://purl.org/rss/1.0/modules/content/" xmlns:atom="http://www.w3.org/2005/Atom" version="2.0"><channel><title><![CDATA[Tuberous Sclerosis New Zealand]]></title><description><![CDATA[TSCNZ is a registered charity providing Information and support for people with Tuberous Sclerosis Complex and their families.]]></description><link>https://www.tsc.org.nz/blog</link><generator>RSS for Node</generator><lastBuildDate>Fri, 17 Jul 2026 06:44:42 GMT</lastBuildDate><atom:link href="https://hayleybrown.wixsite.com/tscnzdraft1/blog-feed.xml" rel="self" type="application/rss+xml"/><item><title><![CDATA[May 2026 Newsletter out now!]]></title><description><![CDATA[TSCNZ Newsletter May 2026 (browser version) Pdf version In this issue: TSCNZ Conference update, TSCNZ Roles TSC Global Awareness Day Fundraising Rare Disorders Month TAND Toolkit App Resources]]></description><link>https://hayleybrown.wixsite.com/tscnzdraft1/post/may-2026-newsletter-out-now</link><guid isPermaLink="false">6a02919048aeb3fcb23e9dfa</guid><pubDate>Tue, 12 May 2026 02:44:56 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/404ef6_e093d0dbdccf4a86977b5136dac011a8~mv2.png/v1/fit/w_1000,h_814,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>lisa24906</dc:creator></item><item><title><![CDATA[Christchurch Coffee Catch-up Oct 11]]></title><description><![CDATA[TSCNZ President Helen Willacy will be at Terra Viva Cafe, 242 Roydvale Avenue, Burnside, Christchurch  from 10:30am on Saturday 11th...]]></description><link>https://hayleybrown.wixsite.com/tscnzdraft1/post/christchurch-coffee-catch-up-oct-11</link><guid isPermaLink="false">68ca20ba1ce12776d6ec568a</guid><pubDate>Wed, 17 Sep 2025 02:51:47 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/404ef6_a9a5c5cc2f9444168f201e3e0d7cb879~mv2.jpg/v1/fit/w_681,h_441,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>lisa24906</dc:creator></item><item><title><![CDATA[Congratulations Helen!]]></title><description><![CDATA[TSCNZ President, Helen, was nominated for a Rare Disorders 25th Anniversary award. Awards were presented at a special ceremony at...]]></description><link>https://hayleybrown.wixsite.com/tscnzdraft1/post/congratulations-helen</link><guid isPermaLink="false">6806cc5c50132b0be236ac7c</guid><pubDate>Fri, 25 Apr 2025 03:04:32 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/404ef6_0bf6b041839a495788ac7e819fabe412~mv2.jpg/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>lisa24906</dc:creator></item><item><title><![CDATA[Support Tom in his Climb for Tuberous Sclerosis Complex]]></title><description><![CDATA[Tom, our wonderful TSCNZ Secretary is climbing Mt Maling [height 1825 metres] in the South Island to raise money for TSC. We're...]]></description><link>https://hayleybrown.wixsite.com/tscnzdraft1/post/support-tom-in-his-climb-for-tuberous-sclerosis-complex</link><guid isPermaLink="false">67f1eb84b62b988f559cb553</guid><pubDate>Sun, 06 Apr 2025 02:57:57 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/404ef6_421d20a3ab374910b70c38931e683dc8~mv2.jpeg/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>lisa24906</dc:creator></item><item><title><![CDATA[February 2025 Newsletter out now!]]></title><description><![CDATA[TSCNZ Newsletter Feb 2025 In this issue: Disability Support Services Consultation Rare Disease Day 28th Feb TSCNZ/Glow Up Show Up events...]]></description><link>https://hayleybrown.wixsite.com/tscnzdraft1/post/february-2025-newsletter-out-now-1</link><guid isPermaLink="false">67c0c7b709ef697d56210cb2</guid><pubDate>Thu, 27 Feb 2025 20:15:00 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/404ef6_77c92a9dd9214f8dbb179dd5911c42fc~mv2.jpg/v1/fit/w_838,h_751,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>lisa24906</dc:creator></item><item><title><![CDATA[October Newsletter Out Now]]></title><description><![CDATA[Check your inboxes or click this link  for all our latest news about get togethers for Rare Disorders Month on 8 March 2025, Bear's...]]></description><link>https://hayleybrown.wixsite.com/tscnzdraft1/post/october-newsletter-out-now</link><guid isPermaLink="false">671c2c570c49f400ea69486f</guid><pubDate>Fri, 25 Oct 2024 23:48:36 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/8ad63a_17afac4384bf4aa18479a55bcaa87c0a~mv2.png/v1/fit/w_529,h_545,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>president4609</dc:creator></item><item><title><![CDATA[TSCNZ AGM 10 August in Auckland]]></title><description><![CDATA[Come and join us in person at Crave Cafe in Auckland or online at the TSCNZ AGM at 2pm on Saturday 10th August. Email info@tsc.org.nz to...]]></description><link>https://hayleybrown.wixsite.com/tscnzdraft1/post/tscnz-agm-10-august-in-auckland</link><guid isPermaLink="false">66af00e19b39aa4f246df32b</guid><pubDate>Sun, 04 Aug 2024 04:25:39 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/8ad63a_191d505ab1e34977b28f4b8643464224~mv2.png/v1/fit/w_1000,h_850,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>president4609</dc:creator></item><item><title><![CDATA[TSC Merch, Global Awareness Day Chat and more]]></title><description><![CDATA[Go to our Newsletters and Resources page for our latest newsletter or click on this link. Find out about your chance to support TSCNZ and...]]></description><link>https://hayleybrown.wixsite.com/tscnzdraft1/post/tsc-merch-global-awareness-day-chat-and-more</link><guid isPermaLink="false">663ee8b86bdcea759a375e49</guid><pubDate>Sat, 11 May 2024 03:45:10 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/8ad63a_9cf27668304e4ae89d4ccff7c7d0c4eb~mv2.jpg/v1/fit/w_1000,h_597,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>president4609</dc:creator></item><item><title><![CDATA[October Newsletter is in inboxes now]]></title><description><![CDATA[Click on this link for all the latest news - AGM Report, Website update, Membership request, Rare Disorders NZ Survey, TSC Chats,...]]></description><link>https://hayleybrown.wixsite.com/tscnzdraft1/post/october-newsletter-is-in-inboxes-now</link><guid isPermaLink="false">651cfae5cb348df465c22fc0</guid><pubDate>Wed, 04 Oct 2023 05:45:46 GMT</pubDate><dc:creator>president4609</dc:creator></item><item><title><![CDATA[July Newsletter is Out Now]]></title><description><![CDATA[Check out the July newsletter for details of our upcoming AGM on Zoom on the 7th August, Conference news and videos, Epilepsy NZ survey...]]></description><link>https://hayleybrown.wixsite.com/tscnzdraft1/post/july-newsletter-is-out-now</link><guid isPermaLink="false">64bcb221157a2d2ba85abe0f</guid><pubDate>Sun, 23 Jul 2023 04:55:21 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/8ad63a_7f684603b87146d38ba7b16ba84c6afa~mv2.jpg/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>president4609</dc:creator></item><item><title><![CDATA[Conference Registrations Closing Soon]]></title><description><![CDATA[Don't miss out! Registrations for the NZ TSC Conference this coming Saturday close on Wednesday 10th May. See you in Auckland! Follow...]]></description><link>https://hayleybrown.wixsite.com/tscnzdraft1/post/conference-registrations-closing-soon</link><guid isPermaLink="false">645893262bd17004657ed712</guid><pubDate>Mon, 08 May 2023 06:27:51 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/8ad63a_82c49450e4aa4d0aa9e1f6bba0d62042~mv2.jpg/v1/fit/w_576,h_248,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>president4609</dc:creator></item><item><title><![CDATA[April Newsletter]]></title><description><![CDATA[Our April newsletter is out now! Click on this link for all the information about our upcoming conference to mark Global Awareness Day,...]]></description><link>https://hayleybrown.wixsite.com/tscnzdraft1/post/april-newsletter-1</link><guid isPermaLink="false">644060f2f150ee497452a7c3</guid><pubDate>Wed, 19 Apr 2023 21:50:33 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/8ad63a_d88fdb13dacc41fdbd1a2ac7bcf74017~mv2.jpg/v1/fit/w_612,h_593,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>president4609</dc:creator></item><item><title><![CDATA[Conference Registrations Now Open]]></title><description><![CDATA[Conference registrations and applications for travel &#38; accommodation grants are now open. Click on the eventbrite link for all the...]]></description><link>https://hayleybrown.wixsite.com/tscnzdraft1/post/conference-registrations-now-open</link><guid isPermaLink="false">63a22b6db8197c16fea99832</guid><pubDate>Tue, 20 Dec 2022 21:42:19 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/8ad63a_17e6295fd7c94cdea2998674c0a7c54e~mv2.jpg/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>president4609</dc:creator></item><item><title><![CDATA[November Newsletter]]></title><description><![CDATA[Our November newsletter is out now at this link! Lots of news and some important upcoming dates including our next national conference on...]]></description><link>https://hayleybrown.wixsite.com/tscnzdraft1/post/november-newsletter</link><guid isPermaLink="false">637d2aa2cf77b44fac0b4acc</guid><pubDate>Tue, 22 Nov 2022 20:07:04 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/8ad63a_a5974185cc1643cb9edbde17de1363b5~mv2.jpg/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>president4609</dc:creator></item><item><title><![CDATA[July E-News]]></title><description><![CDATA[The July E-News is out now with all the details of our AGM to be held on Sunday 7th August at the Auckland Botanic Gardens, a report on...]]></description><link>https://hayleybrown.wixsite.com/tscnzdraft1/post/july-e-news</link><guid isPermaLink="false">62ca6aa22cfb32025ef1a383</guid><pubDate>Sun, 10 Jul 2022 06:06:02 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/8ad63a_55ccd3741c7342e4b85bfd82cdc0d691~mv2.jpg/v1/fit/w_540,h_324,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>president4609</dc:creator></item><item><title><![CDATA[We Value Your Feedback]]></title><description><![CDATA[As the country and world open up again, we thought it would be a good time to take stock of where we are as an organisation. TSCNZ aims...]]></description><link>https://hayleybrown.wixsite.com/tscnzdraft1/post/we-value-your-feedback</link><guid isPermaLink="false">6271b4de6e2151ecc5179113</guid><pubDate>Tue, 03 May 2022 23:05:55 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/ab8ceb_e7d91f2b0c26437db5980e1858c4f088~mv2_d_2598_1894_s_2.jpg/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>president4609</dc:creator></item><item><title><![CDATA[TSCNZ Newsletter April 2022]]></title><description><![CDATA[Lots of news in our latest newsletter which is out now including Te Aroha Music Festival, TSCNZ Survey, Committee News, Membership...]]></description><link>https://hayleybrown.wixsite.com/tscnzdraft1/post/tscnz-newsletter-april-2022</link><guid isPermaLink="false">6271a616b27d67c7eb65d28e</guid><pubDate>Tue, 03 May 2022 22:12:12 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/8ad63a_c68bf06a07124907bd28494903c14512~mv2.jpg/v1/fit/w_888,h_434,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>president4609</dc:creator></item><item><title><![CDATA[Parachute Packs ]]></title><description><![CDATA[Almost 200 of these wonderful, informative resources for newly diagnosed individuals and families have been sent out to families,...]]></description><link>https://hayleybrown.wixsite.com/tscnzdraft1/post/parachute-packs</link><guid isPermaLink="false">6227d755163946d72f6cb3a3</guid><pubDate>Tue, 08 Mar 2022 22:43:40 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/8ad63a_072a15932bc04b32b6367e850afe2ab6~mv2.jpg/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>TSCNZ</dc:creator></item><item><title><![CDATA[April Newsletter - Awareness day and online conference ...]]></title><description><![CDATA[Our April Newsletter is out.  It covers a range of things including the Global Awareness day on May 15th and the Onlin e conference that...]]></description><link>https://hayleybrown.wixsite.com/tscnzdraft1/post/april-newsletter-awareness-day-and-online-conference</link><guid isPermaLink="false">609dce712d3a8900155498fa</guid><pubDate>Fri, 14 May 2021 01:16:52 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/ab8ceb_e203b925c6814ae291295edeaf2a22c0~mv2.jpg/v1/fit/w_724,h_690,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>TSCNZ</dc:creator></item><item><title><![CDATA[November Newsletter Out Now]]></title><description><![CDATA[Please see our latest MailChimp newsletter. It includes items on: Progress on Funding of Sirolimus, Research News, Global Awareness Day,...]]></description><link>https://hayleybrown.wixsite.com/tscnzdraft1/post/november-newsletter-out-now</link><guid isPermaLink="false">5fcc05f5d1524d0017cdc8b2</guid><pubDate>Sat, 05 Dec 2020 22:16:58 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/ab8ceb_015fa0b3298e4a01ae278db55686ceca~mv2.jpg/v1/fit/w_568,h_375,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>TSCNZ</dc:creator></item></channel></rss>